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Experience in creating a specialized medical care center for patients with neurodegenerative diseases based on the Clinic of scientific institution

https://doi.org/10.25789/YMJ.2020.72.14

Abstract

The article presents the experience of the specialized medical center on the basis of the clinic of the Federal State Budgetary Scientific Institution of the Yakutsk Scientific Center for Complex Medical Problems for patients with neurodegenerative diseases. The aim of this work is to present an improved model for providing specialized care for patients with neurodegenerative diseases in the Republic of Sakha (Yakutia) and an example of consolidation of the federal medical research institution and the regional ministry of health. The materials in the work include the register of patients with SCA 1 and MND, reporting data of regional neurologists from 2016-2018, regulatory documents of the Ministry of Health of the Russian Federation and the Republic of Sakha (Yakutia). The clinical, comparative analysis and organizational modeling were used for the study. The result of the analysis was the opening of the Center for Neurodegenerative Diseases at the YSC KMP.

About the Authors

T. K. Davydova
Yakutsk Scientific Center for Complex Medical Problems
Russian Federation

Davydova Tatyana Kimovna, Leading Researcher, Ph.D.

Sergelyakhskoe shosse 4, 677010, Yakutsk



S. K. Kononova
Yakutsk Scientific Center for Complex Medical Problems
Russian Federation

Kononova Sardana Kononovna, Senior Researcher, Ph.D.

Sergelyakhskoe shosse 4, 677010, Yakutsk



O. G. Sidorova
Yakutsk Scientific Center for Complex Medical Problems
Russian Federation

Sidorova Oksana Gavrilievna, Research Fellow

Sergelyakhskoe shosse 4, 677010, Yakutsk



A. N. Romanova
Yakutsk Scientific Center for Complex Medical Problems
Russian Federation

Romanova Anna Nikolaevna, director, MD

FGBNU Yakutsk Scientific Center for Complex Medical Problems

Sergelyakhskoe shosse 4, 677010, Yakutsk



N. A. Schneider
ФГБУ Национальный медицинский исследовательский центр им. В.М. Бехтерева; Красноярский ГМУ им. проф. В.Ф. Войно-Ясенецкого
Russian Federation


References

1. Guryeva P.I. Epidemiological and clinical-genetic characteristics of Charcot-Marie-Tooth disease in the Republic of Sakha (Yakutia): diss. abst. Candidate of Med. Scie / Guryeva P.I. - Krasnoyarsk; 2014. - 24 p.

2. Davydova T.K. Sporadic amyotrophic lateral sclerosis in the Republic of Sakha (Yakutia) / T.K. Davydova // Bulletin of NEFU.-2015.-№2 (12) .- P. 119-123.

3. Illarioshkin, S.N. Modern possibilities of identifying the latent stage of the neurodegenerative process / S. N. Illarioshkin, A. G. Vlasenko, E. Yu. Fedotova // Annals of Clinical and Experimental Neurology. - 2013. - T. 7, No. 2. - P. 39-50.

4. Levin O.S. Epidemiology of parkinsonism and Parkinson's disease / O.S. Levin, L.V. Dokadina // Neurological journal. - 2005. - № 5. - P. 41-49.

5. Hereditary diseases of the nervous system in the Republic of Sakha (Yakutia) / IA Nikolaeva, M.N. Korotov, E.E. Gurinov, S.K. Stepanova [et al.] // Yakutsk Medical Journal. -2009. -No. 2 (26). 52-54.

6. Epidemiology of Parkinson's disease in the Republic of Sakha (Yakutia) / T.E. Popova, A.A. Tappakhov, T.Ya. Nikolaeva, L.T. Okoneshnikova [et al.] // Ibid. - 2017.-No.3 (59) .- P. 98-101

7. Sukhomyasova A.L. Autosomal dominant myotonic dystrophy in the Republic of Sakha (Yakutia): diss. abst.candidate of Med. Scie / Sukhomyasova A.L. – Tomsk, 2005.- 22 р.

8. Genetic fitness and selection intensity in a population affected with high-incidence spinocerebellar ataxia type 1 / F.A. Platonov, K. Tyryshkin, D.G. Tikhonov [et al.] // Neurogenetics. - 2016. - V.17(3). Р.179-185. doi: 10.1007/s10048-016-0481-5.

9. C.A. Lane. Alzheimer's disease / Lane C.A., Hardy J., Schott J. M. // Eur J Neurol Review.- 2018.- 25 (1). P. 59-70. DOI: 10.1111 / ene.13439. Epub 2017 Oct 19.

10. https://legalacts.ru/doc/prikaz-minzdravarossii-ot-02062015-n-290n/

11. https://www.neurology.ru/

12. https://ihb.spb.ru/


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For citations:


Davydova T.K., Kononova S.K., Sidorova O.G., Romanova A.N., Schneider N.A. Experience in creating a specialized medical care center for patients with neurodegenerative diseases based on the Clinic of scientific institution. Yakut Medical Journal. 2020;(4):53-57. https://doi.org/10.25789/YMJ.2020.72.14

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ISSN 1813-1905 (Print)
ISSN 2312-1017 (Online)