Bioethical issues in the organization of specialized medical care for patients with motor neuron disease in the Republic of Sakha (Yakutia)
https://doi.org/10.25789/YMJ.2022.80.12
Abstract
Amyotrophic lateral sclerosis (ALS) is a severe neurodegenerative disease in which the death of central and peripheral motor neurons occurs, leading to an inevitable fatal outcome. Bioethical problems arise at any stage of the disease when a patient with ALS goes to a doctor. The help of psychologists, the activities of bioethical committees in medical organizations in informing patients and their relatives about the disease, the awareness of neurologists about social support measures from the state can help in organizing medical and social assistance measures to improve the quality of life Aim: to solve the bioethical problems of patients with ALS to improve the organization of specialized medical care of patients with ALS.
About the Authors
T. K. Davydova
Yakut Scientific Center for Complex Medical Problems
Russian Federation
Russian Federation
Davydova Tatiana Kimovna – PhD in Medicine, external researcher
S. K. Kononova
Yakut Scientific Center for Complex Medical Problems
Russian Federation
Russian Federation
Kononova Sardana Kononovna – chief researcher, head of the Department
N. V. Savvina
M.K. Ammosov North-Eastern Federal University
Russian Federation
Russian Federation
Savvina Nadezhda Valeryevna – MD, Head of the Department Medical Institute
N. A. Schneider
National Medical Research Institute for Psychiatry and Neurology V.M. Bechterev
Russian Federation
Russian Federation
Schneider Natalia Alekseevna – MD, external researcher, Center for Psychiatry and Neurology
St. Petersburg
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Review
For citations:
Davydova T.K., Kononova S.K., Savvina N.V., Schneider N.A. Bioethical issues in the organization of specialized medical care for patients with motor neuron disease in the Republic of Sakha (Yakutia). Yakut Medical Journal. 2022;(4):44-47. https://doi.org/10.25789/YMJ.2022.80.12
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